Everyone gets sick at some point in life, but what is it like being sick with a health condition called Hemoglobin H Constant Spring Disease? (Thalassemia) a form of anemia; This disease is not contagious, it’s inherited by your parents, their parents and through generations. A blood disorder which causes your body to have more white blood cells then red bloods. Which causes your body to run of breath easy sometimes. Some people are as minor as no symptoms and some make a huge impact in everyday life. I don’t like talking about my health problems, but since I don’t know you and you don’t know me I’ll explain what it is. For those that have this condition, you’re not alone and I know what it’s like to not get up sometimes.
I found out I had this condition when I was in 5th grade. One day I didn’t feel good while I was painting and suddenly I turned pale. I was really active and healthy before so I never felt like this. My blood result came back saying I have this blood disorder since I was a little girl. As a little girl at that time, I thought it wasn’t serious and I just carried onto what I did everyday. Fast forward to 5 years later, my health started to fall downhill when I got sick, being sick was nothing. But this time I couldn’t get up, I couldn’t eat and all I wanted to do was just sleep. My parents rushed me to the hospital when I started to hallucinate. My hemoglobin was sitting at 30, the edge of death and that was why i was hallucinating.
Staying in the hospital for a month, I had received 7 packs of blood transfusions, wasn’t a loud to go out the room, puking, coughing and fever constantly. In the end when I finally got discharge I couldn’t even walk, the only time I walked was to the washroom and it was really depressing being like this. Being hospitalized, all I worried about was school, work, and failing. I wanted to go back to the original me but I couldn’t, I was too weak. In my body was someone else blood, I didn’t feel like me, I was scared and I hated myself.
As time went on, I realize I’ve became weaker and weaker growing up. Blood transfusion every 5 years when the weather got cold was brutal. As things in life becomes more difficult, health became a bigger impact. There is no cure for this condition, but to take care of yourself. You may say iron pill, but iron pill becomes an overload in hemoglobin which becomes a chronic anemia and you can die. This condition is connected with other health conditions like bone problems, spleen enlargement, kidney stone and dark urine = urine tract infection. If your Asian I recommend you not to use moth balls in the house, it can block your breathing airway and causing you to faint because it’s one of the allergies. Another allergy is sulfa antibiotics, I use this antibiotics but if it makes you feel really dizzy and weak, it’s best to stop because your hemoglobin is going down. Instead ask for ammo antibiotics.
Through the years of dealing with light headed or feeling like fainting is to get to a bed, grab ice pack and cold water. If you can’t get to any of these the best thing to do is go outside and breathe the cold because cold help you breathe better when you’re at a stage of feeling light-headed. It’s always good to be with someone you trust when you feel this way just in case you faint. Vitamin D, Calcium and Folic Acid are your everyday friend. If you’re a woman, these things help for your future pregnancy. Go see
Sometimes you may think that a lot of stuff you can’t do, you can! You just go to protect yourself when it comes to competitive sports. Protect your spleen, your bones, and stay healthy. This does not change the beautiful person you are!